{"id":3581,"date":"2024-02-21T08:35:21","date_gmt":"2024-02-21T08:35:21","guid":{"rendered":"https:\/\/www.almacgroup.com\/clinical-technologies\/?p=3581"},"modified":"2024-06-05T11:35:38","modified_gmt":"2024-06-05T10:35:38","slug":"navigating-a-rare-disease-a-mothers-story","status":"publish","type":"post","link":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/","title":{"rendered":"Navigating a Rare Disease: A Mother\u2019s Story"},"content":{"rendered":"\n<h4 class=\"wp-block-heading\" id=\"h-rare-disease-day-interview-with-lori-leathers\">Rare Disease Day interview with Lori Leathers<\/h4>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"626\" height=\"467\" data-src=\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Lori-1.jpg\" alt=\"Photo of Lori Leathers and her son Gabe\" class=\"wp-image-3583 lazyload\" data-srcset=\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Lori-1.jpg 626w, https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Lori-1-300x224.jpg 300w, https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Lori-1-429x320.jpg 429w\" data-sizes=\"(max-width: 626px) 100vw, 626px\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" style=\"--smush-placeholder-width: 626px; --smush-placeholder-aspect-ratio: 626\/467;\" \/><noscript><img decoding=\"async\" width=\"626\" height=\"467\" src=\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Lori-1.jpg\" alt=\"Photo of Lori Leathers and her son Gabe\" class=\"wp-image-3583\" srcset=\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Lori-1.jpg 626w, https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Lori-1-300x224.jpg 300w, https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Lori-1-429x320.jpg 429w\" sizes=\"(max-width: 626px) 100vw, 626px\" \/><\/noscript><\/figure>\n\n\n\n<p><\/p>\n\n\n\n<p>Rare Disease Day\u00ae, which this year is observed on February 29 (the rarest day on the calendar) is a day to honour the millions impacted by unique and often complex conditions. While there are many who were led to Almac by their dedication to clinical development, there are some who were led to our company through very personal experiences. Today, we want to share the journey of Lori Leathers, business development manager at Almac Clinical Technologies and mother of an adult son with Fragile X syndrome.<\/p>\n\n\n\n<p>Lori\u2019s son, Gabe, has special needs arising from Fragile X syndrome (FXS) \u2013 a rare genetic disorder that causes various physical, intellectual, and behavioral health issues. Lori\u2019s devotion to caring and advocating for Gabe, who was first diagnosed as a toddler, has been a central feature of her life as a mother and career woman.<\/p>\n\n\n\n<p>Before her son\u2019s diagnosis was even confirmed through genetic testing, Lori participated in twice-weekly occupational therapy sessions with him. Eventually, he also needed physical and speech therapy, which she could accommodate with her job in field-based sales. As Gabe grew, however, and his educational needs became more specialised and time-consuming, she felt the need to resign from her corporate position.<\/p>\n\n\n\n<p>In a move both practical and altruistic, Lori became a self-employed consultant to help other parents in similar situations. \u201cWhen children with special needs or a rare disease become 21, school districts are no longer responsible for their educational services,\u201d Lori explained. \u201cSo, there are a number of practical supports that are needed and financial steps that families must take to ensure that their loved ones receive Supplemental Security Income (SSI) and have funding available in the future. I could share my own knowledge and experience with others, and my schedule gave me the freedom to help Gabe take part in clinical trials as they became available.\u201d<\/p>\n\n\n\n<p>Initially, the trials available to Gabe were non-interventional observational studies, but over time, more studies have opened for medications treating symptoms of Fragile X Syndrome. Currently, Gabe is enrolled in an open-label extension study specifically targeting Fragile X Syndrome. Gabe, now 22, is doing well. He lives independently near Lori, with round-the-clock supervision.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"210\" height=\"219\" data-src=\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Lori-2.jpg\" alt=\"Photo of Fragile X Syndrome Patient, Gabe Leathers\" class=\"wp-image-3584 lazyload\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" style=\"--smush-placeholder-width: 210px; --smush-placeholder-aspect-ratio: 210\/219;\" \/><noscript><img decoding=\"async\" width=\"210\" height=\"219\" src=\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Lori-2.jpg\" alt=\"Photo of Fragile X Syndrome Patient, Gabe Leathers\" class=\"wp-image-3584\" \/><\/noscript><\/figure>\n\n\n\n<p><\/p>\n\n\n\n<p>And Lori has once again turned her personal interest into a career focus when she joined Almac six months ago. \u201cI\u2019ve been able to bring my first-hand experience with being involved in clinical studies to emphasise the need for patient engagement in clinical research,\u201d she said. \u201cIt is very helpful to be able to share my experience with Sponsors. Plus, I know that my work is helping to get much-needed therapies to patients and families much faster.\u201d<\/p>\n\n\n\n<p>Lori is appreciative of Almac\u2019s work environment and culture. She notes, \u201cEveryone has been very friendly, patient-focused, and supportive of my needs to travel with my son for research purposes. And, I have access to all the most current information about treatments in the investigational pipeline, which I can share it with other families in this space.\u201d<\/p>\n\n\n\n<p>Lori\u2019s roughly 20 years of personal experience in supporting a special needs child has given her a unique perspective that is especially helpful to loved ones of those recently diagnosed with a rare disease. Her encouraging words to them are:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Be a strong advocate for your loved one<\/strong>. Don\u2019t take \u201cno\u201d for an answer; find answers for yourself and question things you\u2019re not comfortable with. Listen to your instincts.<\/li>\n\n\n\n<li><strong>Reach out to others for support<\/strong>. Advocacy groups are a great resource for information about potential interventions and clinical trials, and people in the rare disease and special needs communities are very helpful.<\/li>\n\n\n\n<li><strong>Don\u2019t become discouraged<\/strong>. The road may be long, but there is help along the way, and hope for advances with continuing research.<\/li>\n<\/ul>\n\n\n\n<p>Lori has navigated the process of caring for Gabe through her persistence and willingness to get involved. She feels fortunate to be working at Almac where her personal and professional interests align so well. May her story shine a light on the unwavering strength and dedication of patients, their caregivers, and the continued pursuit of answers by our clinical research Sponsors and partners. \u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Rare Disease Day interview with Lori Leathers Rare Disease Day\u00ae, which this year is observed on February 29 (the rarest day on the calendar) is a day to honour the millions impacted by unique and often complex conditions. While there are many who were led to Almac by their dedication to clinical development, there are [&hellip;]<\/p>\n","protected":false},"author":824,"featured_media":3615,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[],"event_business_unit":[],"class_list":["post-3581","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v25.3.1 (Yoast SEO v26.3) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Navigating a Rare Disease: A Mother\u2019s Story - Clinical Technologies<\/title>\n<meta name=\"description\" content=\"Lori\u2019s devotion to caring and advocating for Gabe, who was first diagnosed as a toddler, has been a central feature of her life\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Navigating a Rare Disease: A Mother\u2019s Story\" \/>\n<meta property=\"og:description\" content=\"Lori\u2019s devotion to caring and advocating for Gabe, who was first diagnosed as a toddler, has been a central feature of her life\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/\" \/>\n<meta property=\"og:site_name\" content=\"Clinical Technologies\" \/>\n<meta property=\"article:published_time\" content=\"2024-02-21T08:35:21+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-06-05T10:35:38+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Rare-Disease-Day-Tile-2.png\" \/>\n\t<meta property=\"og:image:width\" content=\"628\" \/>\n\t<meta property=\"og:image:height\" content=\"628\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"brendanhagan\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@admin\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"brendanhagan\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/\"},\"author\":{\"name\":\"brendanhagan\",\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/#\/schema\/person\/1f1c1d742cb5a4f03636a1da933615d5\"},\"headline\":\"Navigating a Rare Disease: A Mother\u2019s Story\",\"datePublished\":\"2024-02-21T08:35:21+00:00\",\"dateModified\":\"2024-06-05T10:35:38+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/\"},\"wordCount\":701,\"publisher\":{\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Rare-Disease-Day-Tile-2.png\",\"articleSection\":[\"Uncategorized\"],\"inLanguage\":\"en-GB\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/\",\"url\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/\",\"name\":\"Navigating a Rare Disease: A Mother\u2019s Story - Clinical Technologies\",\"isPartOf\":{\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Rare-Disease-Day-Tile-2.png\",\"datePublished\":\"2024-02-21T08:35:21+00:00\",\"dateModified\":\"2024-06-05T10:35:38+00:00\",\"description\":\"Lori\u2019s devotion to caring and advocating for Gabe, who was first diagnosed as a toddler, has been a central feature of her life\",\"breadcrumb\":{\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#breadcrumb\"},\"inLanguage\":\"en-GB\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#primaryimage\",\"url\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Rare-Disease-Day-Tile-2.png\",\"contentUrl\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Rare-Disease-Day-Tile-2.png\",\"width\":628,\"height\":628,\"caption\":\"mother and daughter sitting at home using laptop\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Clinical Technologies\",\"item\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Navigating a Rare Disease: A Mother\u2019s Story\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/#website\",\"url\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/\",\"name\":\"Clinical Technologies\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-GB\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/#organization\",\"name\":\"Almac Group Ltd\",\"url\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2020\/04\/almac-logo-with-strapline.jpg\",\"contentUrl\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2020\/04\/almac-logo-with-strapline.jpg\",\"width\":643,\"height\":296,\"caption\":\"Almac Group Ltd\"},\"image\":{\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/#\/schema\/logo\/image\/\"}},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/#\/schema\/person\/1f1c1d742cb5a4f03636a1da933615d5\",\"name\":\"brendanhagan\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/97fe66cb6f22792c12b631a4de19c3a59fd276cfc0dc0c04b9652993785686df?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/97fe66cb6f22792c12b631a4de19c3a59fd276cfc0dc0c04b9652993785686df?s=96&d=mm&r=g\",\"caption\":\"brendanhagan\"},\"sameAs\":[\"https:\/\/x.com\/admin\"],\"url\":\"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/author\/brendanhagan\/\"}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"Navigating a Rare Disease: A Mother\u2019s Story - Clinical Technologies","description":"Lori\u2019s devotion to caring and advocating for Gabe, who was first diagnosed as a toddler, has been a central feature of her life","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/","og_locale":"en_GB","og_type":"article","og_title":"Navigating a Rare Disease: A Mother\u2019s Story","og_description":"Lori\u2019s devotion to caring and advocating for Gabe, who was first diagnosed as a toddler, has been a central feature of her life","og_url":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/","og_site_name":"Clinical Technologies","article_published_time":"2024-02-21T08:35:21+00:00","article_modified_time":"2024-06-05T10:35:38+00:00","og_image":[{"width":628,"height":628,"url":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Rare-Disease-Day-Tile-2.png","type":"image\/png"}],"author":"brendanhagan","twitter_card":"summary_large_image","twitter_creator":"@admin","twitter_misc":{"Written by":"brendanhagan","Estimated reading time":"4 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#article","isPartOf":{"@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/"},"author":{"name":"brendanhagan","@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/#\/schema\/person\/1f1c1d742cb5a4f03636a1da933615d5"},"headline":"Navigating a Rare Disease: A Mother\u2019s Story","datePublished":"2024-02-21T08:35:21+00:00","dateModified":"2024-06-05T10:35:38+00:00","mainEntityOfPage":{"@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/"},"wordCount":701,"publisher":{"@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/#organization"},"image":{"@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#primaryimage"},"thumbnailUrl":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Rare-Disease-Day-Tile-2.png","articleSection":["Uncategorized"],"inLanguage":"en-GB"},{"@type":"WebPage","@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/","url":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/","name":"Navigating a Rare Disease: A Mother\u2019s Story - Clinical Technologies","isPartOf":{"@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#primaryimage"},"image":{"@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#primaryimage"},"thumbnailUrl":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Rare-Disease-Day-Tile-2.png","datePublished":"2024-02-21T08:35:21+00:00","dateModified":"2024-06-05T10:35:38+00:00","description":"Lori\u2019s devotion to caring and advocating for Gabe, who was first diagnosed as a toddler, has been a central feature of her life","breadcrumb":{"@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#breadcrumb"},"inLanguage":"en-GB","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/"]}]},{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#primaryimage","url":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Rare-Disease-Day-Tile-2.png","contentUrl":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2024\/02\/Rare-Disease-Day-Tile-2.png","width":628,"height":628,"caption":"mother and daughter sitting at home using laptop"},{"@type":"BreadcrumbList","@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/navigating-a-rare-disease-a-mothers-story\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Clinical Technologies","item":"https:\/\/www.almacgroup.com\/clinical-technologies\/"},{"@type":"ListItem","position":2,"name":"Navigating a Rare Disease: A Mother\u2019s Story"}]},{"@type":"WebSite","@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/#website","url":"https:\/\/www.almacgroup.com\/clinical-technologies\/","name":"Clinical Technologies","description":"","publisher":{"@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.almacgroup.com\/clinical-technologies\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-GB"},{"@type":"Organization","@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/#organization","name":"Almac Group Ltd","url":"https:\/\/www.almacgroup.com\/clinical-technologies\/","logo":{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/#\/schema\/logo\/image\/","url":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2020\/04\/almac-logo-with-strapline.jpg","contentUrl":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-content\/uploads\/sites\/8\/2020\/04\/almac-logo-with-strapline.jpg","width":643,"height":296,"caption":"Almac Group Ltd"},"image":{"@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/#\/schema\/logo\/image\/"}},{"@type":"Person","@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/#\/schema\/person\/1f1c1d742cb5a4f03636a1da933615d5","name":"brendanhagan","image":{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/www.almacgroup.com\/clinical-technologies\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/97fe66cb6f22792c12b631a4de19c3a59fd276cfc0dc0c04b9652993785686df?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/97fe66cb6f22792c12b631a4de19c3a59fd276cfc0dc0c04b9652993785686df?s=96&d=mm&r=g","caption":"brendanhagan"},"sameAs":["https:\/\/x.com\/admin"],"url":"https:\/\/www.almacgroup.com\/clinical-technologies\/blogs\/author\/brendanhagan\/"}]}},"_links":{"self":[{"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/posts\/3581","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/users\/824"}],"replies":[{"embeddable":true,"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/comments?post=3581"}],"version-history":[{"count":19,"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/posts\/3581\/revisions"}],"predecessor-version":[{"id":3842,"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/posts\/3581\/revisions\/3842"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/media\/3615"}],"wp:attachment":[{"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/media?parent=3581"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/categories?post=3581"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/tags?post=3581"},{"taxonomy":"event_business_unit","embeddable":true,"href":"https:\/\/www.almacgroup.com\/clinical-technologies\/wp-json\/wp\/v2\/event_business_unit?post=3581"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}